Dare To
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Ed McCaffrey
  Football Camp & Cheer Camp
 
For Children With Down Syndrome
Presented by the Global Down Syndrome Foundation
 
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Global Down Syndrome Affiliates

About the Global Down Syndrome Foundation

The Global Down Syndrome Foundation is a non-profit corporation dedicated to significantly improving the lives of people with Down syndrome by supporting basic research, clinical research and clinical care.

Facts About Down Syndrome

  • Down syndrome or Trisomy 21, is a condition whereby there are three copies of the 21st chromosome instead of two.
  • Down syndrome is one of the leading causes of cognitive delay in the world - it is not related to race, nationality, religion or socio-economic status
  • More than 400,000 people in the US and an estimated 3 million world-wide have Down syndrome.  
  • Improvement in care over the last 15 years has led to a 20-point increase in IQ for people with Down syndrome.
  • In the 1980's the life expectancy of people with Down syndrome was 20 years old - today it is 55 and increasing.  
  • Despite being the most frequently occurring chromosomal disorder (1 in 691 births), Down syndrome is the least funded genetic condition by the National Institutes of Health, receiving only 0.0007 of a $31 billion budget in 2010

Dr. Barry Martin

Barry Martin, MD, is Board Certified in Family Medicine. He has more than 14 years' experience providing primary health care for adults with disabilities, especially developmental disabilities. He is a board member of the American Academy of Developmental Medicine and Dentistry.

Dr. Martin is a member of the American Association on Intellectual and Developmental Disabilities and past co-chair of the Health and Wellness Action Group. He is also a member of the National Down Syndrome Congress and the American Association on Health and Disability. In addition, Dr. Martin is the Vice President of Clinical Affairs at Metro Community Provider Network, and an Associate Clinical Professor of Family Practice at the University of Colorado at Denver and Health Sciences Center.

Pat Winders

Senior Physical Therapist, Down Syndrome Specialist

Sie Center for Down Syndrome

The Children’s Hospital, Aurora, CO

Patricia C. Winders, PT, received her B.S. in Physical Therapy from the University of Florida in 1975. Since 1981, she has specialized in providing physical therapy to children with Down syndrome. She is author of Gross Motor Skills in Children with Down Syndrome: A Guide for Parents and Professionals, published by Woodbine House in August of 1997.

She is a senior physical therapist and Down Syndrome Specialist at The Children’s Hospital in Aurora, Colorado. She began in 2008 and is the first hired for the Anna and John J. Sie Center for Down Syndrome, whose goal is to create a medical and clinical care dream team dedicated to children with Down Syndrome. Prior to TCH, she worked for 19 years with children and adults at the Kennedy Krieger Institute Down Syndrome Clinic in Baltimore, Maryland.

She also serves on the Clinical Advisory Board of the National Down Syndrome Society (NDSS) and on the Professional Advisory Committee of the National Down Syndrome Congress (NDSC). She is the recipient of the 2004 NDSC Meritorious Service Award.


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